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Balancing Grief and Survival: Grounded Theory Analysis of Experiences of Children with Brain Tumours and Their Parents

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Title: Balancing Grief and Survival: Grounded Theory Analysis of Experiences of Children with Brain Tumours and Their Parents
Author: Eaton Russell, Ceilidh
Department: Department of Family Relations and Applied Nutrition
Program: Family Relations and Applied Nutrition
Advisor: Beaton, JohnLollis, SusanBouffet, Eric
Abstract: While researchers have explored many important aspects of living with childhood cancer, including the multitude of strains on family members and their reactions, very little is known about the experiences of children with brain tumours and their parents. Grounded theory methods were utilized to explore the unique and shared elements of the experiences of childhood brain tumours, from the perspectives of these children and their parents. Woven throughout their stories were expressions of grief and uncertainty related to the tumour and its effects on their lives. Children and parents tried to maintain a positive outlook and a sense of normalcy, in order to cope and to adapt to the struggles and the changes in their lives. A substantive theory of Balancing Grief and Survival was developed, offering a lens through which to view the children’s and parents’ complex experiences, struggles and coping strategies as integrated, dynamic processes.
URI: http://hdl.handle.net/10214/7739
Date: 2013-12


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