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Caring for children with intellectual disabilities Part 1: Experience with the population, pain-related beliefs, and care decisions

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dc.contributor.author Genik, Lara
dc.contributor.author McMurtry, Meghan
dc.contributor.author Breau, Lynn
dc.date.accessioned 2021-03-18T20:04:37Z
dc.date.available 2021-03-18T20:04:37Z
dc.date.copyright 2017
dc.date.created 2017-03
dc.date.issued 2017
dc.identifier.other https://doi.org/10.1016/j.ridd.2017.01.020.
dc.identifier.uri https://hdl.handle.net/10214/24141
dc.description.abstract Some children with intellectual disabilities (ID): experience pain more frequently than children without ID, express their pain differently, and are incapable of providing self-reports. No research has examined disability and pain-related beliefs of respite workers (RW) and their relations to pain assessment and management decisions for children with ID. Objectives: (1) compare disability and pain-related beliefs between RW and a sample with little experience in ID; (2) determine whether individuals’ beliefs and personal characteristics are related to pain assessment and management decisions. Participants: Fifty-six RW (aged: 18 – 67 years, Mage = 33.37, 46 female) and 141 emerging adults (aged: 18 – 31 years, Mage = 19.67, 137 female). Procedure/Measures: In an online survey, participants responded to six vignettes depicting pain in children with ID, and completed measures of pain and disability-related beliefs. Results/Discussion: Compared to those without experience, RW held more positive disability-related beliefs, t(192) = 4.23, p < .001. Participants’ pain-related beliefs (e.g., sensitivity to pain) differed depending on severity of the child’s ID and participant group. Participants’ pain-related beliefs predicted care decisions. Results provide initial insight into RW pain-related beliefs about children with ID, and a basic understanding of the relations among pain beliefs, personal characteristics and pain-related decisions. en_US
dc.language.iso en_US en_US
dc.publisher Elsevier en_US
dc.rights Attribution-NonCommercial-NoDerivatives 4.0 International *
dc.rights.uri http://creativecommons.org/licenses/by-nc-nd/4.0/ *
dc.subject children en_US
dc.subject intellectual disabilitiy en_US
dc.subject respite en_US
dc.subject pain management en_US
dc.subject pain assessment en_US
dc.title Caring for children with intellectual disabilities Part 1: Experience with the population, pain-related beliefs, and care decisions en_US
dc.type Article en_US
dc.degree.department Department of Psychology en_US
dc.rights.license All items in the Atrium are protected by copyright with all rights reserved unless otherwise indicated.
dcterms.relation Genik, L. McMurtry, M. Breau, L. 2017. Caring for Children with Intellectual Disabilities Part 1: Experience with the Population, Pain-Related Beliefs, and Care Decisions. Research in Developmental Disabilities. https://doi.org/10.1016/j.ridd.2017.01.020. en_US


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