Caring for children with intellectual disabilities Part 1: Experience with the population, pain-related beliefs, and care decisions

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dc.contributor.authorGenik, Lara
dc.contributor.authorMcMurtry, Meghan
dc.contributor.authorBreau, Lynn
dc.date.accessioned2021-03-18T20:04:37Z
dc.date.available2021-03-18T20:04:37Z
dc.date.copyright2017
dc.date.createdMar-17
dc.date.issued2017
dc.degree.departmentDepartment of Psychologyen
dc.description.abstractSome children with intellectual disabilities (ID): experience pain more frequently than children without ID, express their pain differently, and are incapable of providing self-reports. No research has examined disability and pain-related beliefs of respite workers (RW) and their relations to pain assessment and management decisions for children with ID. Objectives: (1) compare disability and pain-related beliefs between RW and a sample with little experience in ID; (2) determine whether individuals’ beliefs and personal characteristics are related to pain assessment and management decisions. Participants: Fifty-six RW (aged: 18 – 67 years, Mage = 33.37, 46 female) and 141 emerging adults (aged: 18 – 31 years, Mage = 19.67, 137 female). Procedure/Measures: In an online survey, participants responded to six vignettes depicting pain in children with ID, and completed measures of pain and disability-related beliefs. Results/Discussion: Compared to those without experience, RW held more positive disability-related beliefs, t(192) = 4.23, p < .001. Participants’ pain-related beliefs (e.g., sensitivity to pain) differed depending on severity of the child’s ID and participant group. Participants’ pain-related beliefs predicted care decisions. Results provide initial insight into RW pain-related beliefs about children with ID, and a basic understanding of the relations among pain beliefs, personal characteristics and pain-related decisions.en_US
dc.identifier.citationGenik, L. McMurtry, M. Breau, L. 2017. Caring for Children with Intellectual Disabilities Part 1: Experience with the Population, Pain-Related Beliefs, and Care Decisions. Research in Developmental Disabilities. https://doi.org/10.1016/j.ridd.2017.01.020.
dc.identifier.otherhttps://doi.org/10.1016/j.ridd.2017.01.020.
dc.identifier.urihttps://hdl.handle.net/10214/24141
dc.language.isoen_USen_US
dc.publisherElsevieren_US
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 International*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.subjectchildrenen_US
dc.subjectintellectual disabilitiyen_US
dc.subjectrespiteen_US
dc.subjectpain managementen_US
dc.subjectpain assessmenten_US
dc.titleCaring for children with intellectual disabilities Part 1: Experience with the population, pain-related beliefs, and care decisionsen_US
dc.typeArticleen
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