A randomized controlled trial evaluating a pain assessment and management program for respite workers supporting children with disabilities Part one: Pain-related knowledge and perceptions

dc.contributor.authorGenik, Lara
dc.contributor.authorMcMurtry, Meghan
dc.contributor.authorAerts, Elisabeth
dc.contributor.authorBarata, Chantel
dc.contributor.authorStephen, Barney
dc.contributor.authorNewby-Clark, Ian
dc.date.accessioned2021-03-24T19:12:51Z
dc.date.copyright2020
dc.date.createdJun-20
dc.date.issued2020
dc.degree.departmentDepartment of Psychologyen
dc.description.abstractPain is common for children with intellectual and developmental disabilities (I/DD), yet specialized caregiver-based education is lacking. Objectives: This parallel group RCT tested effectiveness of the Let’s Talk About Pain training on respite workers’ (RW) pain-related knowledge and feasibility-confidence-skill ratings using between-group (pain vs. control) and within-group (pain training only) analyses. Methods: Fourteen children’s respite organizations were randomized using sequentially numbered, opaque, sealed envelopes to receive pain or control training. Researchers were blind until randomization; allocations were not explicitly revealed to organizations and participants. Participants (nintervention = 66; ncontrol = 92) underwent a 3-3.5 hour training and completed pain-related knowledge measures and feasibility-confidence-skill ratings at pre, post and 4-6 week follow-up. Intention-to-treat (nintervention = 65; ncontrol = 92) and per-protocol (nintervention = 26-38, ncontrol = 40-57) analyses were conducted. Results: Participants receiving pain training demonstrated (a) significantly higher pain knowledge and feasibility-confidence-skill ratings at post and follow-up versus control group and (b) significant increases in knowledge from pre-post. Despite a small decrease in mean scores, significant gains in knowledge and confidence-skill ratings were maintained from post-follow-up. Discussion: Results demonstrated improvements in RW knowledge and feasibility-confidence-skill ratings. This represents a promising step towards enhancing pain-related care provided to children with I/DD.en_US
dc.identifier.citationGenik, L. McMurtry, M. Aerts, E. Barata, C. Stephen, B. Newby-Clark, I. 2020. A randomized controlled trial evaluating a pain assessment and management program for respite workers supporting children with disabilities Part one: Pain-related knowledge and perceptions. American Journal on Intellectual and Developmental Disabilities. [Manuscript accepted].
dc.identifier.urihttps://hdl.handle.net/10214/24152
dc.language.isoen_USen_US
dc.rights.licenseAll items in the Atrium are protected by copyright with all rights reserved unless otherwise indicated.
dc.subjectpainen_US
dc.subjectchildrenen_US
dc.subjectintellectual disabilityen_US
dc.subjectdevelopmental disabilityen_US
dc.subjecteducationen_US
dc.subjectrespite workersen_US
dc.titleA randomized controlled trial evaluating a pain assessment and management program for respite workers supporting children with disabilities Part one: Pain-related knowledge and perceptionsen_US
dc.typeArticleen
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