Pain in children with intellectual disabilities: A randomized controlled trial evaluating caregiver knowledge measures

Genik, Lara
McMurtry, Meghan
Pimerleau, Chantale
Breau, Lynn
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Future Medicine

Inadequate knowledge has contributed to inaccurate pain assessment and treatment for children with intellectual disabilities (ID). Aims: Develop and evaluate pain knowledge measures and accompanying self-report ratings; determine their sensitivity to change. Materials/Methods: Young adults (n = 77; Mage = 18.89; SD = 2.29; 67 females) were randomly assigned to one of two ‘caring for children with ID’ training programs (pain, visual supports). Participants completed pre-post measures of pain knowledge and six self-report ratings of feasibility, confidence and perceived skill in pain assessment and treatment. Results: After controlling for pre-training scores, pain knowledge and self-report ratings were significantly higher following pain training versus visual support training. Conclusions: These measures show promise for the evaluation of pain knowledge in secondary caregivers.

children, intellectual disabilities, caregiver knowledge, pain assessment, treatment
Genik, L. Pomerleau, C. McMurtry, M. Breau, L. 2017. Pain in Children with Intellectual Disabilities: A Randomized Controlled Trial Evaluating Caregiver Knowledge Measures. Pain Managment.;